For conditions and diseases, this information most often includes causes, symptoms, diagnosis, and treatment. McAllister also advocated for transparency: "Be accountable. Contributing factors to non-disclosure of diagnosis. International Code of Medical Ethics. Be careful about HIPAA, but don't over-react, Davis said. Questions to ask may include: What is my diagnosis? Withholding the truth is mainly based in the fear of causing despair to patients. In European and North American societies direct truth telling is more culturally acceptable (De Pentheny et al., 2011). She is the Director of Content for a medical marketing agency, and is certified in inbound marketing, content marketing, email marketing, site structure, and keyword research. Another helpful tool isGoogle Trends. ", Terri Pollick, also known as Mother Jones, RN, is the blogger behind Nurse Rached's Place. Most of these differences are basically attributed to cultural expectations and to ethnic background of both medical staff and patients (Kendall, 2006). Determine individual preferences for information. Maynard D. W. On realization in everyday life: the forecasting of bad news as a social relation. This is an open-access article distributed under the terms and conditions of the Creative Commons Attribution license (, To what extent should the patient be informed, Who should take the responsibility of telling the bad news (doctor, patients family) and to whom should the doctor disclose the diagnosis (patient or his/her relatives). Required fields are marked *. But you have to use some common sense," Pollick said. No wonder we are so often misunderstood, and with all the upcoming changes in medicine too. That could mean asking the reader to schedule an appointment, but be careful not to ask them to do something they arent ready for. They felt strengthened by supportive encounters with health professionals, relatives, friends, and from their blogging. Current researches suggest that in many cases patients interpret hidden information as health professionals withhold bad news (Fallowfield, Jenkins, & Beveridge, 2002; Tattersall, Butow, & Clayton, 2002). In Saudi Arabia 75% of doctors discuss information with close relatives, rather than patients and in Kuwait 79% of Physicians withhold the truth after patients family request. De Pentheny OKelly C, Urch C, Brown E. A. Transcranial magnetic stimulation, or TMS, is a noninvasive form of brain stimulation. Arribas V. R, Martinez E. S, Sarasola M. Z, Benito I. G, Redin S. A, Ibanez V. T. Cancer diagnosis: do we want to know the truth? Gold M. Is honesty always the best policy? Study with Quizlet and memorize flashcards containing terms like Patients have a right to notification of a facility's privacy practices., The medical assistant never has to ask for identification of patients in the office setting, because this can be easily assumed., The medical assistant should always document any form of communication about the patient's preferences in releasing PHI. Creating videos can present a significant time and cost investment, so this may be something you want to reserve for your best-performing content. A little Q&A about your pacemaker. d. informatics. 2005. Then, the main factors that contribute to non-disclosure of diagnosis will be presented. Withholding the truth is based in the fear that bad news will drastically and negatively alter a patients view of their future. Thanks to all of you who attended my 11th Annual Heart-Smart Women talk in Victoria, BC , Like some of my most deliciously niggling inspirations these days, this one started on Twitter. On the other hand a lot of recent studies from different cultural environments suggest that most cancer patients want to know more information about their diagnosis and prognosis (Pimentel et al., 1999; Noone et al., 2000; Sapir et al., 2000; Seo et al., 2000; Arribas et al., 2004; Cox et al., 2006; Jiang et al., 2007). Methods: The person delivering the bad news should be someone whom the patient trusts and feels most conformable with. Include a clear call to action (CTA) in every piece of content. I was proud of the piece and prouder yet when I learned that it would be published. Balcony Roses: Finally in Bloom! Starting at the level of patients comprehension and vocabulary, avoiding using technical words, giving information in small chunks, checking the patients understanding and avoiding excessive bluntness, may help the whole procedure (Maynard, 1996). Clinical and hospital information system. Read more about HIPAA and publishing online and let us know what you think in comments. "I'd love to blog about every single patient who come through the doors in the ER. I first had to demonstrate in advance to the conference organizers some semblance of credibility as a patient blogger so theyd know I wouldnt be wasting both their time and the time of the busy conference presenters I wanted to interview. Photo by Angilee Shah], "It doesn't necessarily have to be 100 percent true. Heres how patients, patient advocates, caregivers and/or citizen dentists can now attend a medical/healthcare conference: Many medical conferences still have clear guidelines restricting media accreditation to those journalists working in traditional media. Once you know your audience, you can start determining which topics are most important to them. 1 / 61 Flashcards Learn Test Match Created by dmespo Terms in this set (61) Microblogging A form of blogging where entries are kept brief by way of character limitations Hashtags A method for organizing social media posts by keywords and topics Microblogging Uses in Healthcare the contents by NLM or the National Institutes of Health. Pierce SK, Reynolds KA, Hardman MP, Furer P. BMC Pregnancy Childbirth. Post it on your social media channels with a link to your website, and include it in your next email newsletter. Tactic Conversations in Common Areas Gossiping about patients with other staff should always be off-limits, but especially in common areas. Federal government websites often end in .gov or .mil. "It's popular to be snarky. A blog is simply a website or section of a website that is regularly updated with new content, typically written informally and conversationally. We talk about how to craft their anecdotes into compelling narratives, to harness emotions into images, to describe a person vividly through detail and metaphor. Very glad youve qualified to attend medical conferences as a blogger, Carolyn. Since the first half of twentieth century the dominant view about truth telling in terminally ill patients, was influenced by a paternalistic tradition. "It behooves you to put a lot of time and space between you and an incident that has made you upset, even if it's only 24 hours.". Often, by simply answering these questions in your post, you can develop a thorough piece of content that provides a lot of helpful information. Significant others (relatives) can be involved but only according to patients choice (Baile et al., 2000). government site. There are many parameters that lead to the concealment of truth. Arthritis patient advocate, speaker and a, To which patient advocate, speaker (and also a. Medical Record Documentation Examples Using Electronic Health Records? 1. May lead to an abdication of doctors responsibility, Not feeling comfortable taking away hope from patients. The differences in the behavior of patients, whose majority want to know their diagnosis, and relatives, who usually prefer non-disclosure of information, show us that patients, in many cases, follow the principle of autonomy, whereas family follow the principle of beneficence, which rationalizes non-disclosure (Wang et al., 2004). and more. Annals of the New York Academy of Sciences. Although a television broadcast of a patients death, without family consent, is particularly egregious, is publishing an essay about a patients personal life that different? Centeno-Cortes C, Nunez-Olarte J. M. Questioning diagnosis disclosure in terminal cancer patients: a prospective study evaluating patients responses. Barbour tweeted out a call for ideas about cutting costs, and Jennifer Carter replied, "Schedule regular medical exams like everyone else instead of paying University Medical Center employees overtime to do it when clinics are usually closed.". Baile W. F, Buckman R, Lenzi R, Glober G, Beale E. A, Kudelka A. P. SPIKES a six-step protocol for delivering bad news: application to the patient with cancer. Friis L. S, Elverdam B, Schmidt K. G. The patient's perspective: a qualitative study of acute myeloid leukaemia patients need for information and their information-seeking behaviour. Remember that identifying information includes websites and Twitter handles. Your past blog I rang the bell and no one came we are pretty much on our own I fear so we as patients and women need to stick together and support one another. Residents, new doctors in their most intense years of training, are immersed in storiesstories of the hospital and illness, of tragedies and cures. No? Epub 2013 Aug 30. cataloging the image An EHR specialist is training a newly hired staff member when a patient who is receiving inpatient care dies. Nowadays in the USA the majority of patients are told of their diagnosis. Right now, we need both: patient bloggers who will qualify for media accreditation to cover medical events for their readers, and patients in the audience/at the microphones/onstage to represent the patient voice. . She said nothing. Difficulties based on individual differences (sex, age, cultural and social background). If you dont have direct patient contact, ask the providers or front office staff to tell you what patients are most concerned about. We also use third-party cookies that help us analyze and understand how you use this website. Clipboard, Search History, and several other advanced features are temporarily unavailable. (July), 11. The piece was published and well-received. All of your medical issues, including physical health conditions or mental health conditions, such as depression. I believe that smart health conference organizers should not only allow patient bloggers to cover their events, but they should recruit and encourage bloggers to write about these conferences. Unable to load your collection due to an error, Unable to load your delegates due to an error. Balcony Roses: A Bare-Root Rose? A common mistake made by new bloggers is to attempt to make their content appeal to everyone, but this can result in a blog that has very little value to your ideal audience. Study in Iran showed that almost half of the terminally ill patients with cancer were not aware of their diagnosis. People typically scan online content and look for the information most pertinent to them. Balcony Roses: a Powdery Mildew Festival, 17. Before you start writing your blog, its important to understand exactly who youre writing for. And yet I also felt anxious. The site is secure. 2006. But is the avoidance of truth telling an effective strategy of protection ? The use of weblogs within palliative care: a systematic literature review. Besides, in this country legislation allows non-disclosure (Kazdaglis et al., 2010). (March), 4. Kazdaglis G. A, Arnaoutoglou C, Karypidis D, Memekidou G, Spanos G, Papadopoulos O. In such situations, a limited patient-physician relationship exists. Patients frequent find out the truth through media sources and Internet, which many times are not reliable. Need help with your medical content strategy? Anonymous bloggers "cross the line routinely" and will have a lot of trouble if their institutions ever identify them as staffers. An Historical-Anthropological Analysis. I really appreciate reading your perspective, Kim although its even more discouraging when medical professionals themselves observe this lack of interest in womens issues. Most readers dont want to take the time to make sense of a medical study or even an abstract. Would you like email updates of new search results? It is very important while sharing medical information nothing remains uncertain. Redact irrelevant information but understand that HIPAA has important exceptions for education and training, he explained. a qualitative analysis of blog content. Read the scenario and answer the question that follows. Preferences of cancer patients regarding the disclosure of bad news. At the same time leaving decision making entirely in the hands of the patient is a kind of an abdication of doctors responsibility (Gold, 2004). Health professionals must tailor their approach to individual needs, since each one of the patients consists of a different occasion. True The most important contributing factors to non-disclosure are related with the three different parts that are involved in such a situation: doctor, patient and his/her relatives. the providers/clinicians are under even greater strain to cut costs vs. best interests of patient at times, so they too are quite stressed. You can ask for it at your local library or neighbourhood bookshop (please support your favourite independent bookseller) or order it online (paperback, hardcover or e-book) at Amazon or order it directly from my publisher, Johns Hopkins University Press (use their code HTWN to save 30% off the list price). If you are trying hard to come up with a composite patient but the post just isn't working, "listen to your gut and don't write about it." Bookshelf (June), 13. Thanks so much for helping to spread the word! If your podcast is produced ahead of time, you have more control and more responsibility to remove information that violates patient privacy. Be friendly and open, meet new people, do more listening than talking, and enjoy this unique behind-the-scenes opportunity. Shannon Cairns is a board certified podiatric physician in Texas, and enjoys blogging at. Just say, 'Remember patient confidentiality.'" McAllister's third rule: "Some things should just never be blogged about," she said. Indeed, since nowadays there is a number of cancer patients who still want the doctor to have a dominant role in decision-making (Butow, Tattersall, & Goldstein, 1997). This was her story, too. An official website of the United States government. Youll often even find a corner table where coffee and light meals are laid out for while youre busy writing. The site is secure. b. computer science. Most professional websites these days have a blog, although it might be called something different, such as news or latest stories.. However an absolutistic approach is often not helpful. Although bad news is always bad, however it is said, the way of conveying has a crucial effect, not only to the patient, but also on the care-giver (Narayanan et al., 2010). Definition 1 / 60 D. disciplinary measures for addressing resistance by professionals. Also, keep in mind that your writing can be used in malpractice suits, so follow your instincts about keeping certain cases out of your blog. Ptacek J. T, Eberhardt T. L. Breaking bad news. True or False: A health care provider may discuss a patient's health information over the phone with the patient's family, friends, or others involved in the patient's care or payment for care without proof of who the person is? Especially in crowded hospitals where a private place is difficult to find (Shahidi et al., 2007). Retrieve from: Yardley S. J, Davis C. L, Sheldon F. Receiving a diagnosis of lung cancer: patients interpretations, perceptions and perspectives. These cookies will be stored in your browser only with your consent. Why would I want to write about his suffering, and hers? While it may feel like a very narrow focus to tailor your content directly to a 34-year-old work-from-home mother of three, specificity in marketing is essential for reaching the right audience and building mutually beneficial relationships with them. You have several options for distributing your content. She was glad to hear from me, but a bit baffled. Shahidi J, Taghizadeh-Kermani A, Yahyazadeh S. H, Khodabakhshi R, Mortazavi S. H. Truth-telling to cancer patients from relatives point of view: a multi-centre study in Iran. Jiang Y, Liu C, Li J. Y, Huang M. J, Yao W. X, Zhang R, Wei Y. Q. It will also provide suggestions on related terms that are trending or increasing in popularity. Dont leave your reader hanging at the end of your blog post; invite them to do something. Offering truth: One ethical approach to the uninformed cancer patient. Research has shown that physicians do not feel comfortable taking away the hope from patients, while there is also a strong fear of not knowing how to handle patients emotional reactions (Lin et al., 2003; Surbone, 2004). Attended primarily to see if womens heart disease /Coronary Microvascular Disease and Coronary Vasospasm Disorder were discussed at all, as well as keeping my CMEs current as I am still Board Certified yet no longer actively practicing. A buyer persona is a written description that pinpoints several key characteristics about your ideal customer or patient. Balcony roses: Who do you love? Bissonnette-Maheux V, Provencher V, Lapointe A, Dugrenier M, Dumas AA, Pluye P, Straus S, Gagnon MP, Desroches S. J Med Internet Res. However, since nowadays the issue of telling the patient the truth about their diagnosis and treatment options is approached differently in various countries, while there is still no global consensus on it (Georgaki, Kalaidopoulou, Liarmakopoulos, & Mystakidou, 2002; Tieying, Haishan, Meizhen, Yan, & Pengqian, 2011).
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